Stay Strong!

Hey guys!

I woke up this morning and realized that...
Well, this morning I realized nothing at all! I just wanted to go bad to bed again, but that's the thing...

Even when I'm having a bad day. Even if I don't wanna be me sometimes, I still have to do so 'cause somewhere out there, there is a person who feels the exact same way... And I know this may sound wierd, but I just want to be a person to look up to and tell other people, that it's gonna be OK.

I wish someone had been there to tell me that when I was younger...
My life might have looked diferent if I had someone to look up to back then. A person who felt the way I did - someone who could let me kno that I was not alone.

I guess the reason I started this blog is hat I want to let you guys know, that you're not alone and everything is gonna be OK... at least someday.
When things are bad you should always remember that the rain won't last forever, the sun will always come back after the rain.
Even if it's winter in your life right now, you need to know that it will be followed by spring and summer  <3

Stay strong!

Moebius Syndrome

This poem was not written by me - I don't know the name of the writer, but I just think that nothing desribes Moebius Syndrome better than this... 

There's a giggle in my belly

There's a smile in my soul

In my dreams I can talk clearly 

And my nerves I can control 

But in real life there is a problem

You can't see beneath my skin

So you look just on the surface

And you notice I can't grin

My face can't make a smile

And it's hard to close my eyes

I was born with Moebius Syndrome

What a name for a disguise

'Cause I am not this syndrome

I'm a me that's much like you

Though I may look slightly different

And I may at times seem blue

Some people think that laughter 

Must show right on your face

But if you've lived with Moebisu Syndrome

You'd know that's not the case

So teach your heart to listen

It will hear what you can't see

We will have the greatest friendship

If you stick around with me. 

This is me

Hello! 
My name is Ida, I'm 17 years old and I live in Denmark

I was born on March 25th 1997 in Aalborg, Denmark. from the first time my parrents saw me, they knew the there was something "not normal" about me, something different they said.

Three months later they were told that I was born with a rare neurological disorder called Moebius Syndrome. 
I don't wanna go into details 'cause that's not important, but I will tell you that it leaves you unable to move your face, so some people call us stone face because we can't show emotions that way. 
In my case it's not that bad and some people with Moebius look a lot worsen than I do...

Anyway, the reason I've started this blog is that I want to tell other people who are born with something that makes them different, that you shouldn't let some rare desease change who you are and who you wanne be...
It's ot worth it! Everybody should be allowed to be accepted and to fit in and to be part of a group somewhere.