Monday, March 23, 2015

Moebius Syndrome

This poem was not written by me - I don't know the name of the writer, but I just think that nothing desribes Moebius Syndrome better than this... 

There's a giggle in my belly
There's a smile in my soul
In my dreams I can talk clearly 
And my nerves I can control 

But in real life there is a problem
You can't see beneath my skin
So you look just on the surface
And you notice I can't grin

My face can't make a smile
And it's hard to close my eyes
I was born with Moebius Syndrome
What a name for a disguise

'Cause I am not this syndrome
I'm a me that's much like you
Though I may look slightly different
And I may at times seem blue

Some people think that laughter 
Must show right on your face
But if you've lived with Moebisu Syndrome
You'd know that's not the case

So teach your heart to listen
It will hear what you can't see
We will have the greatest friendship
If you stick around with me. 

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